The Saoirse Foundation in partnership with a team of researchers led by Dr Honor Nicholl, School of Nursing and Midwifery Trinity College, Dublin is pleased to announce a forthcoming research study that will investigate the information needs of parents of children with rare diseases (The RD-WIFI study).
All parents and guardians are invited to take part in the study which will start on May 27th 2014 with a focus group. The major part of the study will take place in June 2014 when a questionnaire will be released which can be completed online or by post.
If you would like to take part please email us at info@saoirsefoundation.com or 083 0044444.